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World Asthma Day 2017 - Fun film encourages children to use inhalers

 

This new short fun film has been written by our Associate Member, Education for Health’s, Chief Executive, Monica Fletcher OBE and Jane Scullion, Trustee and Respiratory Nurse Consultant University Hospitals of Leicester NHS Trust, to mark the charity’s 30th anniversary.

“We hope this film will provide a fun way for those who care for children with asthma to get across an important message about effective inhaler use and encourage these children to take part in a whole range of activities and enjoy life to the full,” said Monica.

The two-minute film can be viewed here:
https://www.youtube.com/watch?v=Ae5lTVJTaHw 


Other World Asthma Day initiatives supported by the IPCRG: World Asthma Day 2017 - IPCRG supports the Unmask My City campaign

Jaime Correia de Sousa represented the IPCRG and primary care perspectives at  a Strategic Technical Meeting on the Management of Chronic Respiratory Diseases (CRDs) with the World Health Organization in Geneva 5-6 October 2015 and members of the Federation of International Respiratory Societies (FIRS).  The meeting was focused mainly on diagnosis and treatment of asthma and COPD,  access to medicines and technologies for CRDs.

There was substantial consensus about the need for strengthening systems to improve diagnosis, recognising the need for simple affordable methods.  The group also reviewed the essential medicines list and the WHO PEN protocols (Package of Essential Noncommunicable Disease Interventions for Primary Health Care in Low-Resource Settings), recommending changes to enhance care for people with COPD and asthma.

 

We will update this information with further news when it becomes available.

Five IPCRG members contribute to the World Health Organization (WHO) Global Alliance against chronic Respiratory Diseases (GARD):

Jaime C Sousa elected as Primary Care representative on the planning group,

Niels Chavannes elected as Scientific representative on the planning group

Kristine Whorlow elected as Patient Organisations representative

Osman Yusuf elected as Country representative

Monica Fletcher, Chief Executive of one of our associate members, Education for Health, elected as Allied Health representative

 

Newsletter 30th April, 2015
Displaying
Dear IPCRG Colleagues
The IPCRG Annual General Meeting for 2015 will take place on Friday 29th May 2015. A copy of the agenda is below for information. If you have any comments that you wish raised at the meeting, please let me know by return e-mail (BusinessManager@theipcrg.org).
Kind Regards
Ron Tomlins
IPCRG President
  IPCRG Annual General Meeting 2015
Friday 29th May 2015
18.00 – 18.45
Orchid Room
Riverview Hotel
382 Havelock Road
Singapore 169629
1. Welcome and apologies
2. To approve minutes from 21st May 2014 AGM (1)
3. To receive President’s report
4. To receive Treasurer’s report including the audited Accounts and Directors’ report for 2014 (2)
5. To agree the appointment and remuneration of Auditor: The current auditors, Scott Moncrieff are eligible for re-election and their fee would not exceed £9,500
6. To fix subscriptions for 2016
a. Ordinary members: zero
b. Associate Corporate members (2 levels): Euro 36,750 and Euro 6,300
7. To elect the Treasurer: The current Treasurer, Ms Kristine Whorlow, is eligible for re-election
8. Membership – by special resolution to agree
a. Members: Application from Bulgarian Primary Care Respiratory Group (3), Primary Care Respiratory Group, US (4), Kyrgyzstan, IPCRG- Kyrgyzstan (5), NEFES, Turkey (6), FYR Macedonia (7)
b. Associate members: Board nominations for Invited Specialists: Breda Flood, Prof Joao Fonseca, Prof Chunxue Bai, Prof Khoo Ee Ming, Prof Christine Jenkins
9. Conferences
a. 8th World conference, Amsterdam 25-28 May 2016 for information
b. 2018: to agree the country for the 2018 biennial conference. Two bids have been received from GRESP Portugal (8) and PCRG, Sri Lanka (9)
10. Date of next AGM – Wednesday 25th May 2016 during Amsterdam biennial conference
11. Photograph of members
Papers: Not included, for a copy prior to the meeting, please send a request to BusinessManager@theiprcg.org
1. Draft minutes of AGM 21st May 2014
2. Final Audited accounts to 31st December 2014
3. Application from Bulgarian Primary Care Respiratory Group
4. Application from Primary Care Respiratory Group, US
5. Application from IPCRG- Kyrgyzstan (to follow)
6. Application from NEFES, Turkey
7. Application from FYR Macedonia
8. Bid for hosting 9th World conference from GRESP
9. Bid for hosting 9th World conference from PCRG, Sri Lanka
The International Primary Care Respiratory Group (IPCRG) is a charity registered in Scotland working internationally (SC No: 035056) and a company limited by guarantee (Company number 256268)

The IPCRG is the Respiratory Special Interest Group of WONCA Europe and an Organisation in Collaborative Relations with WONCA Global 


The IPCRG is the primary care representative on WHO-Global Alliance against Chronic Respiratory Diseases (GARD) Planning Executive


Supporter of the NCD Alliance
www.theipcrg.org
 

 

Newsletter 28th January 2015
Displaying
Dear IPCRG Colleagues
Reason seven to submit an abstract for our 4th Scientific Meeting being held in Singapore, 28th – 30th May 2015.
Submit previously presented relevant research
Previously presented research is acceptable for submission because our audience is different from other respiratory or primary care conferences and so this is a chance to achieve our mission of getting research findings into the public domain. Please disclose that it has been previously presented. For example, we’ve improved the word count facility so that it matches the ERS word count.
To submit your Clinical Research Results, Research Ideas on Respiratory Conditions and Tobacco Dependence or Implementation Science/Service Development abstract, please follow the links from our website.
Follows us on Twitter @IPCRG2015.
Kind Regards
2015 Scientific Programme Committee
Dr Tan Tze Lee, Singapore, Chair
Dr Tan Ngiap Chuan, Singapore
Professor David Price, Singapore
Professor Josefina S Isidro-Lapena, Philippines
Dr Vinh Nhu Nguyen, Vietnam
Professor Chunxue Bai, China
Professor Khoo Ee Ming, Malaysia
The International Primary Care Respiratory Group (IPCRG) is a charity registered in Scotland working internationally (SC No: 035056) and a company limited by guarantee (Company number 256268)

The IPCRG is the Respiratory Special Interest Group of WONCA Europe and an Organisation in Collaborative Relations with WONCA Global 


The IPCRG is the primary care representative on WHO-Global Alliance against Chronic Respiratory Diseases (GARD) Planning Executive


Supporter of the NCD Alliance
www.theipcrg.org

Newsletter 30th January, 2015
Displaying
Dear IPCRG Colleagues
Reason nine to submit an abstract for our 4th Scientific Meeting being held in Singapore, 28th – 30th May 2015.
Feedback and support offered for selected abstracts that are relevant but need improvement
The Abstract Committee has offered to help authors whose abstracts are relevant but need improvement before they can be accepted. This is particularly aimed at new researchers.
Tips to improve the success of your clinical research abstract:
  • Include a hypothesis
  • Include data
  • Check it is relevant to a primary care audience
  • Check it is relevant to the conference theme
  • If it is a service development consider if it should be submitted using the Implementation Science/Service Development form.
Tips to improve the success of your Implementation science/service development abstract:
  • State the problem the change is trying to address
  • Specify who: who has made/is making the change, and/or who benefits
  • Include measures: more measures, less text is a good way to think
  • Provide evidence of the change (remember we can learn from changes that are not improvements)
  • Consider how it is relevant for a wider international IPCRG audience
  • Include a final message: so what have you learned that you want to share?
  • Avoid presenting a literature review, we want an analysis of a real service change
  • If it is about clinical medicine it might be more suitable for the Clinical Research Results category
A reminder that delegates from the following countries: Pakistan, Bangladesh, South Korea, Indonesia, Malaysia, China, Philippines, Vietnam and Singapore have the opportunity to apply for a bursary to support their attendance at our 4th Scientific Meeting.
Applications to be considered for a bursary should be received by 1st February 2015. We do however welcome applications as soon as you are ready. For more information on criteria and how to apply see website and click on Bursary Programme. Applicants need to submit an abstract for the meeting by Saturday 14th February 2015.
Follow us on Twitter @IPCRG2015.
Kind Regards
2015 Scientific Programme Committee
Dr Tan Tze Lee, Singapore, Chair
Dr Tan Ngiap Chuan, Singapore
Professor David Price, Singapore
Professor Josefina S Isidro-Lapena, Philippines
Dr Vinh Nhu Nguyen, Vietnam
Professor Chunxue Bai, China
Professor Khoo Ee Ming, Malaysia
The International Primary Care Respiratory Group (IPCRG) is a charity registered in Scotland working internationally (SC No: 035056) and a company limited by guarantee (Company number 256268)

The IPCRG is the Respiratory Special Interest Group of WONCA Europe and an Organisation in Collaborative Relations with WONCA Global 


The IPCRG is the primary care representative on WHO-Global Alliance against Chronic Respiratory Diseases (GARD) Planning Executive


Supporter of the NCD Alliance
www.theipcrg.org

Newsletter 29th January 2015
Displaying
Dear IPCRG Colleagues
Reason eight to submit an abstract for our 4th Scientific Meeting being held in Singapore, 28th – 30th May 2015.
Linguistic and structural issues do not impede acceptance
Our philanthropic mission is to build primary care research capability, which is still an under-developed field. Therefore we aim to provide opportunities for new and inexperienced researchers to reach a wider audience and receive peer review that may be difficult in their own country.
To submit your Clinical Research Results, Research Ideas on Respiratory Conditions and Tobacco Dependence or Implementation Science/Service Development abstract, please follow the links from our website.
Follows us on Twitter @IPCRG2015.
Bursary Reminder
A reminder that delegates from the following countries: Pakistan, Bangladesh, South Korea, Indonesia, Malaysia, China, Philippines, Vietnam and Singapore have the opportunity to apply for a bursary to support their attendance at our 4th Scientific Meeting.
Applications to be considered for a bursary should be received by 1st February 2015. We do however welcome applications as soon as you are ready. For more information on criteria and how to apply click on Bursary Programme on our website menu.
Applicants need to submit an abstract for the meeting by Saturday 14th February 2015.
Kind Regards
2015 Scientific Programme Committee
Dr Tan Tze Lee, Singapore, Chair
Dr Tan Ngiap Chuan, Singapore
Professor David Price, Singapore
Professor Josefina S Isidro-Lapena, Philippines
Dr Vinh Nhu Nguyen, Vietnam
Professor Chunxue Bai, China
Professor Khoo Ee Ming, Malaysia
The International Primary Care Respiratory Group (IPCRG) is a charity registered in Scotland working internationally (SC No: 035056) and a company limited by guarantee (Company number 256268)

The IPCRG is the Respiratory Special Interest Group of WONCA Europe and an Organisation in Collaborative Relations with WONCA Global 


The IPCRG is the primary care representative on WHO-Global Alliance against Chronic Respiratory Diseases (GARD) Planning Executive


Supporter of the NCD Alliance
www.theipcrg.org

 

Newsletter 20th January, 2015
Dear IPCRG Colleagues
Reason one to submit an abstract for our 4th Scientific Meeting being held in Singapore, 28th – 30th May 2015
Reach a Unique Audience
The IPCRG conference has a unique audience of primary respiratory care key opinion leaders, highly respected primary care academics, paediatricians, and front-line primary care and community-based practitioners from low, middle and high income countries from all five continents
To submit your Clinical Research Results, Research Ideas on Respiratory Conditions and Tobacco Dependence or Implementation Science/Service Development abstract, please follow the links from www.ipcrg2015.org
Kind Regards
2015 Scientific Programme Committee
Dr Tan Tze Lee, Singapore, Chair
Dr Tan Ngiap Chuan, Singapore
Professor David Price, Singapore
Professor Josefina S Isidro-Lapena, Philippines
Dr Vinh Nhu Nguyen, Vietnam
Professor Chunxue Bai, China
Professor Khoo Ee Ming, Malaysia
The International Primary Care Respiratory Group (IPCRG) is a charity registered in Scotland working internationally (SC No: 035056) and a company limited by guarantee (Company number 256268)

The IPCRG is the Respiratory Special Interest Group of WONCA Europe and an Organisation in Collaborative Relations with WONCA Global 


The IPCRG is the primary care representative on WHO-Global Alliance against Chronic Respiratory Diseases (GARD) Planning Executive


Supporter of the NCD Alliance
www.theipcrg.org
 

 

Newsletter 8TH JANUARY 2015
Dear colleagues
If you are a member of European Respiratory Society (ERS), you may know that elections are currently underway for positions in the ERS Primary Care Assembly. IPCRG has been working closely with the ERS and we are keen to maintain and build on the strong links we have developed with the ERS Primary Care Assembly. This year I would encourage you to vote as some positions have more than one candidate. To vote, log into your ERS account at: https://my.ersnet.org/Login.html. The deadline for voting is next Monday 12th January 2015 and your vote is important.
Best wishes
Dr Ron Tomlins
Dr Ron Tomlins
President
International Primary Care Respiratory Group
Adjunct Associate Professor
Discipline of General Practice
University of Sydney
Telephone +61 412 042 007
The International Primary Care Respiratory Group (IPCRG) is a charity registered in Scotland working internationally (SC No: 035056) and a company limited by guarantee (Company number 256268)

The IPCRG is the Respiratory Special Interest Group of WONCA Europe and an Organisation in Collaborative Relations with WONCA Global 


The IPCRG is the primary care representative on WHO-Global Alliance against Chronic Respiratory Diseases (GARD) Planning Executive


Supporter of the NCD Alliance
www.theipcrg.org
  

 

 

 

To learn more of the successes of IPCRG and our members in 2013 and how we are supporting the global effort to tackle non-communicable respiratory disease and improve primary care management of respiratory conditions click here 

To view our 2012 annual report click here

On 28 November 2013 Rupert Jones represented the IPCRG at an event organised by the European COPD Coalition (ECC) and the European Federation of Allergy and Airways Diseases Patients’ Associations (EFA) under the auspices of the Lithuanian Presidency of the Council of the European Union (EU) to raise the profile of COPD, research about best COPD assessment and care and the involvement of patients and primary care in setting and measuring standards.

 Click here to read more...

Lessons to address the poor state of COPD care in Europe and research in Horizon 2020

To mark World Chronic Obstructive Pulmonary Disease (COPD) Day 2013, the European COPD Coalition (ECC) (1), and the European Federation of Allergy and Airways Diseases Patients’ Associations (EFA) (2) organised an event (3) under the auspices of the Lithuanian Presidency of the Council of the European Union (EU). The conference entitled “What role for diseases and patients in shaping Horizon 2020? A COPD case study of patient involvement” discussed the EU Framework Programme for Research and Innovation – Horizon 2020, and standards of care for COPD, with a patient’s perspective.

COPD (4) was taken as a case study, since this chronic lung disease is marked by increasing prevalence among the European population and isone of the leading causes of premature deaths worldwide and yet, awareness of the COPD is largely insufficient.

The degree in which Horizon 2020 – the financial instrument implementing the Innovation Union: an EU initiative aimed at securing Europe’s global competitiveness- is fit to accommodate disease specific research featured high during the debate. “Given the prevalence and societal and economic burden of COPD, there should absolutely be some kind of ring-fencing of funds for specific diseases such as this that has been underfunded to date. In such areas, researches would otherwise find it hard to compete with larger, more established research fields. Additionally, prevention and patient priorities have been neglected for far too long and should be moved up dramatically in the agenda,” said Mike Galsworthy, from the University College London’s Department of Applied Health Research.

“The clock is ticking when it comes to tackle the acute deficiencies in the way that COPD is treated across Europe. Patients themselves should be given a larger role in shaping research, for instance, in prompting actions – i.e. to be better integrated in EU projects – so that policy-makers and healthcare professionals do not trip over the same stone again when delivering care to patients, pointed out Isabel Saraiva, COPD patient from the Portuguese Association of people with COPD and other Chronic Respiratory Diseases (RESPIRA).

EFA’s report ‘Minimum Standards of Care for COPD Patients in Europe’ (5) was launched during the conference. “As the EFA’s paper highlights, people suffering of COPD and patients of respiratory diseases in Europe have been enduring for decades large disparities in the standards of care received. To overcome these inequalities, patient-driven standards on prevention, diagnosis, care and rehabilitation have to be better measured. There is an urgent need to use this data to drive and improve patients outcomes,“ stated Rupert Jones, General Practitioner for the International Primary Care Respiratory Group.

Over the course of the event, EFA’s booklet ‘Enabling Air Travel with Oxygen in Europe’ (6) was presented as a case study for ongoing discrimination against patients with chronic respiratory diseases.

— end—

Notes to editors

(1) The European COPD Coalition (ECC) is a not-for-profit association under Belgian law, based in Brussels, whose role is to advocate for political action to be taken at the European level to reduce the burden of the disease through collective action and campaigns, seeking the development and implementation of a comprehensive EU public health policy on COPD. ECC aims to be a key facilitator of COPD health policy initiatives at European level. The ECC works with all parties interested in fighting COPD and public health officials to boost awareness of chronic obstructive pulmonary disease (COPD) and decrease the morbidity and mortality caused by this respiratory illness, through advocacy and policy development.

(2) The European Federation of Allergy and Airways Diseases Patients’ Associations (EFA) is a non-profit network of allergy, asthma and COPD patients organisations, representing 35 national associations in 22 countries and over 400,000 patients. EFA is dedicated to making Europe a place where people with allergies, asthma and COPD have the right to best quality of care and safe environment, live uncompromised lives and are actively involved in all decisions influencing their health.

(3) This event displayed a wide range of speakers, like Members of European Parliament, researchers, health care specialists, COPD patients. It also included a lung testing (spirometry) for free at the venue.

(4) Chronic Obstructive Pulmonary Disease (COPD) is the only major chronic disease whose incidence is on the increase and is expected to be the third leading cause of death worldwide by 2030 (exceeded only by heart diseases and stroke). You can learn more about the incidence of COPD here.

(5) Minimum Standards of Care for COPD Patients in Europe

(6) Enabling Air Travel with Oxygen in Europe

Contact information

Catherine Hartmann, the European COPD Coalition (ECC) Secretary General at info@copdcoalition.eu or Tel. +32 (0) 2 230 59 33

Susanna Palkonen, the European Federation of Allergy and Airways Diseases Patients’ Associations (EFA), Executive Officer at info@efanet.org or Tel. +32 (0) 2 227 27 12


Pakistan Primary Care Respiratory Group arranged an Academic activity regarding Pulomanry TB on 19th Oct 2013. General Prectioner, Family Physicains, chest physician from the district of Peshawar participated at the meeting. It was chaired  by the President of the society Dr Hakeem shah. In the seminar information was provided regarding Pulomanry TB, its causes, presentation, treatment regimen, DOTS Program, causes of  Drugs Resistant Tuberculosis in the society and its prevention.

 In the end General Secretary Dr Asif Safi stated thanks to all the participants at the meeting for their interest in these academic activities carried out by the Pakistan primary Care respiratory Group Peshawar Kpk pakistan.  

 

Dr Taj Muhammad

Press Information Secretary

Pakistan Primary Care Repiratory Group

Peshawar KPK pakistan.  

Cell No:- 0092-3009598543

Email Add:- drtaj_2000@hotmail.com

                   drtaj_200@yahoo.com

To celebrate World COPD day on November 20th 2013 we invite you to look at 3 IPCRG resources:

 And remember, it’s not too late to submit your abstract to our 7th World conference in Athens, May 2014 – click here for details on how

Making the case for primary care in the ERS White Book, launched Sept 2013, written by IPCRG President Niels Chavannes and Executive Officer Sian Williams. 

 The chapter summarises the potential positive impact of primary care practitioners on the burden of respiratory disease in Europe, and describes how they could improve access to care and health outcomes. In particular, we should support the calls of the WHO and the Non-Communicable Disease (NCD) Alliance to take action now to combat chronic lung disease. Primary care needs to be made stronger, with less variation of investment between countries and faster progress towards the goals of the 62nd World Health Assembly (WHA62) resolution.

 To view the chapter and the rest of the white book, click here