We are delighted to announce that IPCRG’s Chair of Education, Professor Hilary Pinnock has been elected as Head of Assembly 1 - General Pneumology of the prestigious European Respiratory Society (ERS).
Professor Pinnock, Professor of Primary Care Respiratory Medicine at The University of Edinburgh, a British GP in Whitstable, Kent and Chair of IPCRG’s Education Sub-committee, has been an influential voice in the field of respiratory research for over twenty years. She led the publication of our Research Needs Statement in 2012 and has continually presented the primary care perspective from low, middle and high income countries to research funders, research collaborators and primary care peers. She focuses on the real lives, concerns and challenges of patients with respiratory problems and what their main professional carers, primary care, can do to improve their chances of living well.
ERS Assemblies are the backbone of ERS. All members of the ERS belong to one of the Assemblies which represent their interests. These groups help to set the agenda across all ERS activities. Assembly 1 is by far the largest Assembly including most of the specialist clinician members of the ERS.
Primary Care has been a small group within the Assembly 1 for many years, but this is the first time that a primary care clinician has headed an ERS Assembly. Hilary commented:
“This is a milestone for primary care. It makes a clear statement about the role of primary care as equal partners in the diagnosis and management of people with respiratory disease. When I stood for election, I said patients deserve equitable access to high quality respiratory care that can support them to live with their condition(s). As IPCRG colleagues know, globally, diverse healthcare systems will address this challenge in different ways, but central to all solutions will be the need to integrate respiratory specialist expertise with holistic, locally-available primary care underpinned by supported self-management. I hope I can promote this agenda at the highest level in the ERS for the benefit of our patients”.
On 9th October 2018 Hilary Pinnock, member of the IPCRG Research sub-committee and Chair of our Education Committee presented the primary care research perspective to Members of the European Parliament at a Policy meeting of the European Parliament Interest Group on Allergy and Asthma.
“How to overcome the barriers to research in chronic NCDs in Europe? The case of allergy and asthma”
Co-hosted by MEP Nessa Childers (S&D, Ireland), MEP Anna Záborská (EPP, Slovakia) and MEP David Borrelli (NI, Italy) and organised by our associate members, European Federation of Allergy and Airways Diseases and Allergy Patients Associations (EFA) and the European Academy of Allergy and Clinical Immunology (EAACI).
She spoke on Addressing the societal importance of tackling universal access to high quality respiratory care, as a way to meet the UN Sustainable Development Goals; described what challenges we face in terms of variation in care and access, multimorbidity and inequity including deprivation; explained why primary care is an essential part of the solution and what makes primary care different; shared our work on the research gaps, eg support on diagnosis; supported self management and suggested some priorities, with a focus on implementation.
We are delighted that Ann-Britt Zakrisson was awarded best abstract prize at our recent IPCRG 5th Scientific Meeting.
Title of abstract: Improved quality of care by the PRISMS form in supporting self-management in patients with COPD; A Randomized Controlled Trial (RCT)
Ann-Britt works at University Healthcare Research Center, Region Örebro County as a research supervisor and is affiliated to Faculty of Medicine and Health, Örebro University, Sweden.
Jaime Correia de Sousa
· RESPIRE3 main page: Link to 2017 Application Guidelines, FAQs and online fellowship application platform
· RESPIRE3 Web Host Registry: The RESPIRE3 Web Host Registry platform will enable potential fellowship applicants to search for suitable host centres and contact them, depending on the nature of their own research project. Host centres/supervisors may also contact potential applicants at their own end to discuss a potential fellowship application.
A total of two calls are planned for RESPIRE3, in line with the EU timeline. The 2nd & final call will be launched in autumn 2017, with deadline during spring 2018 (exact timeline TBC).
The U-BIOPRED project, an IMI project with funding from the European Union has finally come to an end, leaving a terrific legacy for the research and asthma community which is as much about the processes as the findings:
- How to involve patients in research
- How to recruit in primary care
- How to work collaboratively across over 40 European institutions
- How to collect, analyse and share "omics" data in children and adults
- How to embed research into genetics and new generations of drugs for personalised prescribing into real life primary care teaching
Go to the U-BIOPRED website for details of publications.
The IPCRG's role has been to sit on the Ethics Board - and thanks to John Haughney for his commitment to this, and to be an active member of Work Package 9, focused on dissemination. We will continue to monitor publications that emerge from the project, and connect with the other partners to ensure the findings that may affect primary care are introduced into teaching and learning across our member countries.
Our Teach the Teacher programme on Difficult to Manage Asthma, funded by U-BIOPRED and supported by the Patient Input Platform and WP9 partners, introduced the programme to pairs of teachers of primary care from eight member countries, testing how to include it successfully in primary care teaching. It incorporated the U-BIOPRED research findings into a broader programme driven by IPCRG's asthma messages and teaching including the SIMPLES structured asthma review, which had been well received at the 2013 ERS primary care session attended by over 400 people. The programme has now been rolled out to all participating countries.
See the IPCRG U-BIOPRED page for more details on the IPCRG abstracts published and in press on this programme.
Together with our UNLOCK programme, IPCRG has now gained considerable experience in collecting and using big data, and we hope that we will continue to be able to work with some of the U-BIOPRED partners to make optimal use of these data, networks, experience and thinking.