The IPCRG has developed a project in response to our members' expressed interest, on describing how to refer to and set up pulmonary rehabilitation and making the case for change to policy makers. It includes three main products:
- A desktop helper (see PDF on the right).
On side 1 it is a Referrer's guide: the essential things you need to know about pulmonary rehabilitation to help breathless people breathe better, feel good and do more!
On side 2 it describes Setting up a pulmonary rehabilitation service from zero to help people breathe better, feel good and do more
- Two films demonstrating how the referral conversation might be done (link to the films).
Film 1 is in a respiratory clinic setting
Film 2 is on a respiratory ward
- A position paper for policy makers: pulmonary rehabilitation for breathlessness, that positions PR as a cost-effective and affordable intervention for breathlessness, due to COPD and other causes (see PDF on the right).
These were developed from the evidence and also practical advice emerging from a multi-disciplinary, multi-national experience-led care meeting hosted and facilitated by the IPCRG in May 2017.
Attendees at the experience-led care meeting (principal role and experience listed only - most are also involved in research)
|Prof||Peymane||Adab||England||Professor of Chronic Disease Epidemiology and Public Health|
|Ms||Maria||Buxton||England||Consultant Respiratory Physiotherapist|
|Dr||Rupert||Jones||UK and Uganda||GP researcher|
|Dr||Ioanna||Tsiligianni||Crete||Assistant Professor, Primary care|
Those who contributed their experience in writing
|Ms||Monica||Ferrer||Spain||Primary care nurse|
Positioning pulmonary rehabilitation as an effective treatment for COPD
In the videos of ways to initiate a conversation about referral to PR, you will see the COPD Value Pyramid from the London Respiratory Network being used.
For more information, see BMJ Journals and also available from http://www.respiratoryfutures.org.uk/knowledge-portal/london-respiratory-network/copd-value-pyramid-thorax-publication/
The Desktop helper
The first product is the Desktop Helper No. 7
This desktop helper aims to be practical: it is based on the IPCRG network’s own experience of trying to implement best practice with limited resources in low, middle and high income countries. It was generated from the evidence, guidelines and experience shared at an experience-led care meeting in May 2017 attended by GPs, researchers, physiotherapists, a psychologist, health planners and managers. Further comments and contributions were received from GPs, nurses and physiotherapists in other countries.
Authors of desktop helper: Siân Williams and Val Amies on behalf of the international expert group listed below.
Reviewer: Prof Sally Singh.
Boehringer Ingelheim funded the experience-led care meeting, writing and production. They took no part in the meeting or drafting.
This desktop helper is advisory; it is intended for general use and should not be regarded as applicable to a specific case.
See www.ipcrg.org/disclaimer Creative Commons Licence Attribution-NonCommercial-ShareAlike
GP colleagues Dr Monsur Habib
and Dr Rowshan Alam learning
how to implement PR, courtesy of
Prof Sally Singh, Leicester. September
IPCRG Position paper 4. March 2018
Pulmonary Rehabilitation (PR) helps people breathe better, feel good, and do more:
Why you should invest in PR for your population
An estimated 1 in 10 adults live with chronic breathlessness. Cardiac or respiratory disease causes two thirds of breathlessness. More than 1 billion people
globally suffer from a chronic lung condition. This paper demonstrates why healthcare systems that develop their capability to deliver easily accessible
PR to urban and rural communities can improve health, social, and economic outcomes.
Authors of position paper : Val Amies, Annemarije Kruis, Siân Williams International Advisory panel: See this page.
Reviewers: Nick Hopkinson, Sally Singh, Rafael Stelmach Editor: Hilary Pinnock
Click here to go back to the pulmonary rehabilitation home page