IPCRG has developed a package of resources to support primary care professionals to provide personalised care to adults with asthma. Personalised care identifies what is most important to each person and ensures that they receive care designed for their individual needs and preferences. By providing personalised care, clinicians can support patients to develop the knowledge, skills and confidence to manage their own health. This is particularly important as evidence shows that patients’ ability to manage their asthma has a major impact on their outcomes including asthma control, exacerbations, hospital admissions and quality of life.
|Glyn Elwyn explains the importance of shared decision-making, a key component of personalised care, in this short film, prepared for the 2018 IPCRG International Conference. In the film he outlines the huge potential of shared decision-making when done well. Glyn is a physician-researcher and Professor at The Dartmouth Center for Health Care Delivery Science and The Dartmouth Institute for Health Policy and Clinical Practice, Dartmouth College, USA. We make the film available here with kind permission of Glyn Elwyn.|
The Learning Resource is in the form of a PowerPoint slide set that can be used by individuals as a tool for self-study and by primary care education providers as part of continuing professional education programmes.
Download here - Personalised Care for Adults with Asthma - Slide Deck (English version)
Download here - Atención Personalizada: Material de aprendizaje (Spanish version)
Desktop Helper No 9: Personalised Care: adults with asthma
IPCRG has developed a Desktop Helper on providing personalised care to adults with asthma. The Desktop Helper provides practical advice for clinicians working in primary care.
The Desktop Helper is also available in Spanish. Thanks to our partners GRAP for their support with the translation. The Spanish version is available by clicking the link: Atención personalizada: Adultos con asma
The Desktop Helper is also available in Portuguese. Thanks to our partners GRESP for their support with the translation. The Portuguese version is available by clicking the link: Cuidados personalizados: Adultos com asma
Position Paper No 5: Making the Case for Personalised Care for Adults with Asthma
This position paper describes personalised care in asthma. We define personalised care and distinguish this from personalised medicine. We argue that the broader approach of personalised care will not only benefit the individual, but also health services and populations, by improving use of medicines and thereby reducing waste, harm and potentially avoidable use of emergency care. We summarise this as improving value. The paperthen makes recommendations about how policy-makers, clinical educators and patient leaders can contribute to the cultural and clinical changes that are needed to make personalised care for adults with asthma and other chronic respiratory diseases a reality. The position paper is available here: Making the Case for Personalised Care for Adults with Asthma
The Position Paper is also available in Spanish. Thanks to our partners GRAP for their support with the translation. The Spanish version is available by clicking the link:Argumentos a favor del tratamiento personalizado para adultos asmáticos
Evidence used to develop these resources
To inform the development of these resources, the IPCRG identified and reviewed relevant research on personalised care, personalised medicine and shared decision-making for asthma and other chronic conditions. Details of this research is available by clicking the link below.
The IPCRG developed these resources with primary care experts with experience of asthma care, including GPs, nurses, pharmacists, health economists and patients. These experts took part in an experience-led meeting that considered the evidence identified (see above). The consensus points are available by clicking the link below. 17-10-06 expert meeting consensus pointsThe experience-led experts who contributed to the resources are:
|Name||Background and country|
|Prof Stephanie Taylor||Professor in Public Health and Primary Care at Barts and the London School of Medicine and Dentistry|
|Juliëtte Kamphuis||Person with asthma from the Netherlands and patient representative|
|Breda Flood||Person with asthma from Ireland and volunteer with the Asthma Society of Ireland|
|Jaime Correia de Sousa||GP and Associate Professor in the School of Health Sciences in the University of Minho, Portugal|
|Ren Lawlor||Senior Lecturer University of Greenwich, Advanced Nurse Practitioner, Respiratory Nurse Specialist, UK|
|Christoph Werner||GP and researcher, Germany|
|Cristina Alonso Porcel||GP, Spain|
|Esther Metting||Researcher and psychologist, the Netherlands|
|Darush Attar-Zadeh||Respiratory Lead Pharmacist and Smoking Cessation National Trainer, UK|
|Christoph Werner||GP and researcher, Germany|
|Derek Forde||GP and lecturer in general practice in Ireland|
|Phil Jefferies||Person with asthma from the UK and volunteer with Asthma UK|
|Michela Tinelli||Health economist, Assistant Professorial Research Fellow at Personal Social Services Research Unit (PSSRU), LSE|
|Siân Williams||IPCRG Chief Executive Officer|
|Liza Cragg||IPCRG Programme Manager|
The Desktop Helper and Position Paper were reviewed by:
- Professor Niels Chavannes, Professor of Primary Care Medicine and Chair of eHealth Applications in Disease Management at LUMC, the Netherlands
- Professor Amanda Barnard, Associate Dean of the School of General Practice, Rural and Indigenous Health, Australian National University Medical School.
The Desktop Helper and Position Paper were edited by Hilary Pinnock, Professor of Primary Care Respiratory Medicine at the University of Edinburgh and a GP in the UK.
GlaxoSmithKline funded the development of these resources. They took no part in their drafting.
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