If you want your country group to join the Asthma Right Care Movement you've come to the right place! Here are all the resources you need to get started.
Background: what is Asthma Right Care?
In October 2017 the International Primary Care Respiratory Group (IPCRG), a clinically-led charity that works locally in primary care in over 30 countries and collaborates globally to improve respiratory health, initiated Asthma Right Care with AstraZeneca support in four pilot countries.
Goal: to get the conversation going about the need at policy and clinical levels to relook at asthma management and move from a state of comfort to discomfort with the present state. And then, once people were ready to ask "how can we do better" to offer options for right care.
Method: to apply the evidence from social movements for health, achieving large scale change and “right care” to asthma to achieve what standard publication, education and advocacy programmes have failed to do: get people reflecting on their current practice, and requesting information and support to do better.
Priority: the problem we decided to tackle first was the over-reliance by patients and clinicians on symptom relief. In particular, we wanted conversations about over-reliance on short-acting beta-agonists (SABA) for asthma management despite the evidence for the use of inhaled corticosteroids, and the numbers of inhalers of SABA prescribed and/or used significantly exceeding national and international guidelines.
To date IPCRG has:
- Piloted the Asthma Right Care programme in four countries and three languages www.ipcrg.org/asthmarightcare
- Designed and tested a set of highly effective conversation starters on the topic of the over-reliance on symptom relief, particularly using short-acting beta agonists, for asthma management, including the asthma slide rule and readiness ruler and question and challenge cards
- Spread the message to:
- New geographies,
- New parts of the healthcare system through engagement with more professional and patient groups particularly community pharmacists who are real champions
- Affect behaviour change through triggering personal reflection
- Adopted the “Network secrets of great change agents” for achieving big change, which recognises the importance of giving a central role to informal networks like IPCRG rather than formal hierarchies, and the need to bridge networks between disconnected groups rather than using cohesive networks
- Reached over 10,000 frontline healthcare professionals and global primary care leaders
- Reached policy-makers eg August 2018 WHO-GARD presentation https://gard-breathefreely.org/ppt2018/ to national representatives from over 40 countries
- Created this Implementation Pack with “how to guides” to enable new local delivery teams to start up
Now we want others to follow! Have a look at these short videos to get a sense of how it differs from a standard education or communications campaign then look through the implementation pack that takes you step by step through the process for getting the Asthma Right Care movement going in your setting.
Video and narration
A video of the slides including narration can be found here https://bit.ly/2FH8atz
Copies of Logos, Letterhead and Powerpoint template are available here https://bit.ly/2TZFW0X
The Asthma Right Care Slide Rule and Question & Challenge Cards in Action
How to use this Implementation Pack
Our vision is for Asthma Right Care to be a global movement, but we are also realists! Some things would benefit from a budget, like a venue to meet, get materials translated and localised, print materials, some people's time. Therefore we need to work together to make the best of the resources we have, and this needs a process:
- Access to this implementation pack is available through application to IPCRG - firstname.lastname@example.org
- If you need budgetary support, IPCRG can contribute a budget (funded by AstraZeneca) and central project management support.
- An initial call will take place between your team, IPCRG and your local AstraZeneca representative to discuss the implementation pack and next steps.
- Once your application has been approved and funding agreed then a local Country Team can be set up - see Step 1 below
- A mentor who has already followed the steps covered by this implementation pack will be identified to support your social movement
- In addition there will be regular Office Hours calls with IPCRG and health care professionals following the Asthma Right Care movement to discuss progress and ask questions
- An FAQs page will be available (to be set up)
Click on each of the sections below to find out more
The Delivery Team should include individuals with:
Commitment to improved asthma outcomes
Direct experience of asthma management (patients, pharmacists, GPs, nurses, ED doctors, pulmonologist etc)
Experience/contacts across the country
Invite your local Delivery Team to meet to
set date for a "Design Charrette" (a bit like a hackathon but not about IT)
agree invitation letter
Stakeholder Analysis and Mapping
What Asthma Right Care Materials do you need
Asthma Slide Rule
Giant Slide Rule
Question & Challenge Cards
Asthma Right Care Videos
Do you need to adapt or translate the materials in advance of the meeting?
What format will your Design Charrette take?
Do you need a facilitator?
Are you including smaller group discussions?
Does the venue had the equipment required for your event, e.g. screens, flipcharts, mics, table set up etc
Copies of the Asthma Slide Rule, Guidance Notes and Question & Challenge cards in English, Portuguese and Spanish - https://bit.ly/2FIVToo
Downloadable versions of the Asthma Right Care Videos can be found here - https://bit.ly/2RqUc1k
Seek ideas about how to tailor Asthma Right Care to your country to stimulate the most conversations and most commitment to change
We can give examples of how these have been adapted, but it really is up to the stakeholders
eg in Portugal they have the power to influence the electronic medical record,
in Spain they have improved the question cards into a game,
others are thinking how the slide rule could be digital
Identify what Asthma Right Care products you need printed
Asthma Slide Rules
Question & Challenge Cards
Identify what communication channels you will use
Links to websites
Social media feeds
Face to face events
Ongoing support from IPCRG with Office Hour calls and FAQs
Share the Asthma Right Care messages
Feedback to the local Delivery Team and to IPCRG
1. It is the responsibility of the IPCRG Member society to notify recipients of any honoraria and/or expenses payments by the society that recipients are responsible for their own tax and regulatory declarations.
2. This includes compliance with any national regulation about payments to clinicians.
3. IPCRG may ask to audit these payments, so societies should keep receipts and be able to justify their expenditure to IPCRG if asked.